Gastroparesis question

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Gastroparesis question

Postby Sharona » Mon Feb 26, 2018 6:43 am

Hi
As mentioned in a recent post I most likely have gastroparesis. I'm finding that dinner /nighttime is when I see the post meal blood sugar crashes and nausea followed by rebounds blood sugars later. For those who suffer with this is it common to have certain times of day it flares up ???? I'm usually ok at breakfast and lunch though I have background nausea nearly all day. I've started having really low carb dinners and waiting for the dexcom to arrow up before I bolus. I am not game to have a big meal as more insulin tends to have a more significant blood sugar drop.
My endo has given me maxolon to have before meals but I haven't found this to help much. I'll see the gastroenterologist soon for further tests but these night time post dinner drops are getting frustrating.
Sharon
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Re: Gastroparesis question

Postby artemis » Mon Feb 26, 2018 7:58 am

Yes, Sharon, I found the nighttime meals the worst. Just as you describe - eat a meal, have a massive hypo, have hypo treatment, go high. And feeling nauseous, sometimes culminating in vomiting.

I was given Maxolon but it didn't work for me, and after trying it for about a month, my then GP put me onto Motilium (Domperidone). That was 14 years ago. I have found that the Motilium works for me, although occasionally I'll have a relapse. Now if I'm lowish at bedtime, I put in a temp basal, go to bed, and wait for the BGL to come up.

I hope you get some relief from this ghastly complication.

If you want to 'talk' privately, contact me at jnjreid1 at bigpond dot com
Jane
Infundo ergo sum.
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Re: Gastroparesis question

Postby Sharona » Mon Feb 26, 2018 11:15 am

Thank you Jane for your reply. I feel a bit better knowing this is a similar pattern to what you experienced.
I will send you an email with some further questions.
Sharon
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Re: Gastroparesis question

Postby Nicole » Mon Feb 26, 2018 11:30 am

I've had gastroparesis for five years now. I found that sometimes my levels would run low quite quickly after meals and then other times they would be high for no reason. When i asked my specialist about it he said that certain foods will go quicker than others depending on what i ate and what my stomach feels like doing. I feel sick most of the time but when i eat its fine. Sick is another thing to watch out for as the diabetes and gastroparesis for me seem to work together against each other. Its a very tricky thing. Different foods sets mine off. I can have the same meal three days in a row. I drink a lot of diet dry ginger ale which i find helps. I'm on motilim twice a day.
Nicole
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Re: Gastroparesis question

Postby Sharona » Tue Feb 27, 2018 11:16 am

Thanks Nicole.
It really is a distressing condition. I'm starting to log everything I eat to try and find a pattern of foods which effect me more than others. Must try the ginger ale also. Good idea.
Sharon
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Re: Gastroparesis question

Postby Catapult » Mon Mar 05, 2018 7:09 pm

Motilium is the best drug. Motilium, people with gastroparesis get an authority script for so you get 100 tablets instead of like 10. You take 1 30 mins before each main meal to help the stomach empty. They don’t work that well for me, it’s hit and miss.

You can get a gastric emptying test at Nuclear medicine places done to see if you definitely have gp.

I find anxiety flares it up terribly.

Fizzy drinks bloat my stomach immediately and I can’t drink anything while eating. I’m only eat soft foods.

Chicken and prawns are my worst and can eject 3 days later. Some days I can’t eat at all.

Cat.
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Re: Gastroparesis question

Postby Sharona » Tue Mar 06, 2018 2:08 pm

Hi Cat,
Yes it seems motilium is the drug of choice. I'm not even officially diagnosed yet but I am finding I'm worse when I'm anxious .... which is a lot.
How do you manage on days when you can't eat ? Do you get 'starvation ketones' ?
Sharon
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Re: Gastroparesis question

Postby Nicole » Tue Mar 06, 2018 3:18 pm

I have used motilium for the past five years but you have to be careful as your body can get to used to it and it won't work. I have 10mg twice a day before breakfast which is Vita B juice, banana and a cup of tea if i have this i'm right if i don't have it in that order im screwed. After 10am i can eat. i also have metoclopramide on hand and use this when i feel like its going to flare up. But i usually end up in hospital needing iv drugs. Its all a guessing game.
Nicole
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