Channel 9 News story tonight- Adults w Type 1 D misdiagnosed

In this part of the Reality Check website, the moderators have saved discussion threads out of the rest of the forum which have addressed a popular issue containing terrific information, or threads that have generated a lot of discussion and which we feel people may well find useful to refer to in future.

Channel 9 News story tonight- Adults w Type 1 D misdiagnosed

Postby Mel » Wed Apr 22, 2009 12:36 pm

Hi Guys,

Watch out for Channel 9, six o'clock news are going to run a story about type 1 this evening. Complete with comment from Type 1 DIabetes Network and hopefully a shot of the starter kit!

Fingers crossed that nothing gets lost in translation and it's a good awareness raising piece about type 1.
Mel
 
Posts: 2747
Joined: Tue Sep 21, 2004 6:03 pm
Location: Sydney

Postby Mel » Wed Apr 22, 2009 2:38 pm

Yep will be national, unless there's some major breaking story that erupts and pushes out the planned spots. So watch out for it!
Mel
 
Posts: 2747
Joined: Tue Sep 21, 2004 6:03 pm
Location: Sydney

Postby artemis » Wed Apr 22, 2009 2:46 pm

Gee, I'll have to break the habit of a lifetime and watch Ch 9 news. Might record it, and watch it at my leisure.

This should be below deviation's post.
Jane
Infundo ergo sum.
artemis
Moderator
 
Posts: 3926
Joined: Sun Jan 29, 2006 10:32 am
Location: Port Stephens, NSW

Postby daneo93 » Wed Apr 22, 2009 3:25 pm

good! I hope they clearly state the difference between us and type 2's. it really bugs me when people say 'oh did you eat bad food?' i just want to punch them.
daneo93
 
Posts: 8
Joined: Tue Oct 07, 2008 9:55 pm
Location: Melbourne, Australia

Postby deviation72 » Wed Apr 22, 2009 3:28 pm

Do you know if this will be in all states, Mel? I hope I can see it in Vic tonight!! :-)
deviation72
 
Posts: 749
Joined: Mon Jan 23, 2006 6:24 pm
Location: Melbourne

Postby Kate » Wed Apr 22, 2009 5:09 pm

and yay to Mel for dropping everything at very short notice on Monday to do the interview, and Amanda in Brisbane for telling her story.

Also looks like the story will be on a few radio news bulletins and newspapers tomorrow, so keep an eye and ear out.

K
Kate
 
Posts: 5249
Joined: Tue Sep 07, 2004 4:08 pm
Location: Melbourne

Postby Mel » Wed Apr 22, 2009 5:43 pm

and yay to Mel for dropping everything at very short notice on Monday to do the interview


I hadn't brought any makeup with me, wasn't really dressed planning to be on tv.......... Ya all owe me for going on tv looking like a fright :)
Mel
 
Posts: 2747
Joined: Tue Sep 21, 2004 6:03 pm
Location: Sydney

Postby Kate » Wed Apr 22, 2009 6:39 pm

I have just put the information about this research that was presented up on the website for those who are interested to see, here:
http://d1.org.au/misdiagnosis

Thanks to everyone who did the survey about your experiences when you were diagnosed with Type 1 diabetes as an adult.

Our survey of over 850 people with Type 1 diabetes who were diagnosed as adults, found that one in three adults were diagnosed with a condition other than Type 1 diabetes when they first visited their healthcare professional.

Obviously this has serious impacts - 5% of people said they ended up in diabetic coma.

Again thanks to everyone who shared their stories with us and hopefully the media interest in the survey results will go some way to dispelling the myth, and reducing the number of people who are misdiagnosed in future, just because they are an adult but with all the symptoms of Type 1 diabetes.
Kate
 
Posts: 5249
Joined: Tue Sep 07, 2004 4:08 pm
Location: Melbourne

Postby Tony » Wed Apr 22, 2009 7:32 pm

Good stuff Mel !

I saw the item and liked it.

Shocking percentage of Misdiagnosis.

How could we get that same info out to GPs ? They're the ones that need Education it seems.
If you want something done, do it yourself. Make the effort and start the Change!
Tony
admin
 
Posts: 869
Joined: Sun Jul 24, 2005 5:45 pm
Location: Sydney

Postby artemis » Wed Apr 22, 2009 8:23 pm

We only got about 60 seconds in total on NBN (Newcastle) and it was right at the end of the bulletin even after the guy had spruiked about sport. However, Mel you did good - and so did Amanda - and Greg Fulcher - got the message across. I think Sydney would have got more, but we had the local news as well, so ...
Jane
Infundo ergo sum.
artemis
Moderator
 
Posts: 3926
Joined: Sun Jan 29, 2006 10:32 am
Location: Port Stephens, NSW

Postby deviation72 » Wed Apr 22, 2009 9:55 pm

We didn't see it tonight on Nine - was waiting excitedly and nothing! Maybe we will see it tomorrow :-)
deviation72
 
Posts: 749
Joined: Mon Jan 23, 2006 6:24 pm
Location: Melbourne

Postby Kate » Thu Apr 23, 2009 9:04 am

Hi Tony -
GPs watch the news. Just kidding. There are a few weekly magazines that go to GPs with all sorts of updates and we are delighted that they are both interested in running a story so that is great news. Fingers crossed.
I have done a million radio interviews in the last 18 hours so let us know if you hear it on the news or in the papers today too.
Kate
Kate
 
Posts: 5249
Joined: Tue Sep 07, 2004 4:08 pm
Location: Melbourne

Postby Kate » Thu Apr 23, 2009 9:59 am

Story has been published at length in The Australian online here:

http://www.news.com.au/adelaidenow/stor ... 62,00.html

Bewdiful description of the difference btw Type 1 & 2 towards the end - others agree?
Kate
 
Posts: 5249
Joined: Tue Sep 07, 2004 4:08 pm
Location: Melbourne

Postby Kate » Thu Apr 23, 2009 10:36 am

Jane- There's going to be an in-depth interview with Carol Duncan ABC Newcastle just after 11 today - hope you heard that. :) K
Kate
 
Posts: 5249
Joined: Tue Sep 07, 2004 4:08 pm
Location: Melbourne

Postby ali m » Thu Apr 23, 2009 12:02 pm

GPs and other docs definitely don't watch the news regularly.
I reckon the best way to get the message out might be in the weekly mags called Australian Doctor and Medical Observer. I read them and they are a good digest of all the studies and research floating around in the universe.
ali m
 
Posts: 1230
Joined: Mon Aug 15, 2005 12:05 am
Location: SA/QLD

Postby Mel » Thu Apr 23, 2009 3:25 pm

Hopefully between the various news articles, Australian, Tele and a few others plus loads of radio interviews at least a few GPs will hear it.
Mel
 
Posts: 2747
Joined: Tue Sep 21, 2004 6:03 pm
Location: Sydney

Postby carolyn » Thu Apr 23, 2009 3:29 pm

There was even a little story about it in the local Albury- Wodonga paper, pretty much an abbreviated version of the longer story in the posted link.
Half the people you know are below average.
carolyn
 
Posts: 1683
Joined: Thu Oct 07, 2004 9:48 am
Location: Albury-Wodonga

Postby artemis » Thu Apr 23, 2009 3:39 pm

Kate wrote:Jane- There's going to be an in-depth interview with Carol Duncan ABC Newcastle just after 11 today - hope you heard that. :) K

Bugger! We were in Newcastle at that time. John was having sutures removed. Glad that the ABC picked it up, though.

I couldn't find anything in the SMH this morning.
Jane
Infundo ergo sum.
artemis
Moderator
 
Posts: 3926
Joined: Sun Jan 29, 2006 10:32 am
Location: Port Stephens, NSW

Postby tristo » Thu Apr 23, 2009 10:07 pm

Kate wrote:Jane- There's going to be an in-depth interview with Carol Duncan ABC Newcastle just after 11 today - hope you heard that. :) K


Bugger I missed it too. I'm a serial 1233AM listener too, the boys at work love to get into me about being a 50 yr old stuck in a 20 yr olds body!
tristo
 
Posts: 177
Joined: Sat Sep 13, 2008 12:27 pm
Location: Newcastle

Postby abs » Fri Apr 24, 2009 4:15 pm

quote from that article Kate linked to:

Type 2 diabetes is caused by lifestyle issues such as obesity, and in many cases the sufferer still produces enough insulin but they need drugs to help the body process it correctly.


Hmmm, missing "typically" or "often" before "caused". There are plenty of healthy/slim blah blah etc T2's about as well
abs
 
Posts: 2925
Joined: Thu Oct 07, 2004 5:44 pm
Location: Sydney, Australia

Postby Mel » Fri Apr 24, 2009 6:45 pm

Yes, accuracy would have benefited from the addition of "commonly" or "usually". Altho I'd have to say compared to the dreadful inaccuracies in much of the reporting of type 1 or "diabetes" in general, it's a minor ommission.
Mel
 
Posts: 2747
Joined: Tue Sep 21, 2004 6:03 pm
Location: Sydney

Postby abs » Mon Apr 27, 2009 2:40 pm

well they get just as P'd off as us, when they get "oh but you're not" blah blah by the various know-it-all's
abs
 
Posts: 2925
Joined: Thu Oct 07, 2004 5:44 pm
Location: Sydney, Australia

Postby Caraline » Wed Apr 29, 2009 10:59 am

I missed the show, but great to be able to read about it.

Thanks Kate & RC folk for getting this message out there.
Caraline
 
Posts: 293
Joined: Sat Aug 16, 2008 11:13 am
Location: South Coast, NSW, Australia

Postby benny81 » Wed Apr 29, 2009 1:47 pm

Hi all,

Yes, congrats to Kate and the gang. There was also a 5 minute radio story during the show Panacea on Sydney station 2SER 107.3 last night. Its available as a podcast from -

http://www.2ser.com/podcasts/

- you can download the April 28 show, and its 12min30secs in. Some of it sounded familiar...

cheers,
b.
benny81
 
Posts: 70
Joined: Tue Apr 14, 2009 9:45 am
Location: Sydney

Postby Mel » Wed Apr 29, 2009 1:56 pm

Thanks for the link Benny81,

The media coverage has been fantastic, actually. It's been good to see the message out there that type 1 and type 2 diabetes are different conditions.

98 radio news alerts
3 print pieces –national AAP newswire and major metropolitan newspapers ,10 online pieces
4 medical and pharmacy press – including front page of Australian Doctor, Pharmacy Daily, Pharmacy News and 6 minutes.com –
Ch 9 TV coverage (Syd)
Mel
 
Posts: 2747
Joined: Tue Sep 21, 2004 6:03 pm
Location: Sydney

Postby Kate » Wed Apr 29, 2009 5:46 pm

Yes, front page of Australian Doctor !! is a fantastic outcome as that is what many GPs read as we have said earlier, so might actually make things better for the next people being diagnosed, this week anyway .....

Big thanks are due to everyone at Abbott Diabetes Care for supporting this Type 1 awareness campaign as part of their ongoing support of our Starter Kit for newly-diagnosed adults. Regards, Kate
Kate
 
Posts: 5249
Joined: Tue Sep 07, 2004 4:08 pm
Location: Melbourne

misdiagnos

Postby caseopaya » Tue May 05, 2009 9:28 am

Misdiagnosis was probably the main factor in my brother's death last year. We only just got the coroners report last month, he died of DKA. I doubt he was ever told about DKA since he was diagnosed as type 2 because he was overweight and in his late 30s at the time. Later there was talk that he might be a type 1 but the doctors could never agree. He lost his confidence in doctors, and being the tough Aussie bloke he was didn't go to a doctor when he was really sick. Just makes me really want to scream out to all the people that don't take their diabetes seriously.
caseopaya
 
Posts: 8
Joined: Mon Nov 21, 2005 8:59 pm
Location: Melbourne

Postby Mel » Tue May 05, 2009 12:24 pm

Cas, that's a terrible story, I'm so sorry to hear about your brother.
Mel
 
Posts: 2747
Joined: Tue Sep 21, 2004 6:03 pm
Location: Sydney

Postby Kate » Tue May 05, 2009 4:58 pm

Oh I'm sorry Cas, that's terrible.
Kate
 
Posts: 5249
Joined: Tue Sep 07, 2004 4:08 pm
Location: Melbourne


Return to Solid Gold - Some of our Favourites!