When were you told the cure would come? For a speech pls!

In this part of the Reality Check website, the moderators have saved discussion threads out of the rest of the forum which have addressed a popular issue containing terrific information, or threads that have generated a lot of discussion and which we feel people may well find useful to refer to in future.

When have you been told the cure would come?

By the year 2000
In 5 years
In 10 years
In 'my' (meaning the doctor's) lifetime
Really soon
Total votes : 40

When were you told the cure would come? For a speech pls!

Postby Kate » Thu May 08, 2008 6:42 pm

Hi - I've been invited to do a talk alongside stuff about research and new technologies and the cure, to give the perspective of people living with D now and getting on with it while we 'wait' for the cure .... anyway, I thought it might be a kind of entertaining way to start with a straw poll of how overdue our cure is ... so ..... (it is very unscientific I know, just for light humour more than anything!). Any good storeis welcome too.....
Posts: 5249
Joined: Tue Sep 07, 2004 4:08 pm
Location: Melbourne

Postby LongRidge » Thu May 08, 2008 7:45 pm

I cannot recall (but of course, that might be because of the Altsheimers) that in my 50 odd years I have ever been told that a cure was close. Except of course all the quack remedies ...... What I was told about 10 years ago is that T1D is so scarey to medical researchers that damn all work had been done on finding the cause and the cure.
Posts: 832
Joined: Mon May 29, 2006 6:24 pm
Location: Nelson,NZ

Postby Jen (nli) » Fri May 09, 2008 12:10 am

i was told that I was very fortunate to be diagnosed in the (late) 1980s because there would be almost certainly be a cure within my lifetime.

Its now heading into the late 2000s and I've been told "well, there may not be a lot for your generation, but there will almost certainly be a cure within the next generation's lifetime"

... I think "my" cure has skipped a generation.
Jen (nli)
Posts: 2639
Joined: Tue Aug 09, 2005 8:46 pm

Postby carolyn » Fri May 09, 2008 8:47 am

We need a "I can't remember" option for those of us who have been D for so long they can't remember back that far!
Half the people you know are below average.
Posts: 1683
Joined: Thu Oct 07, 2004 9:48 am
Location: Albury-Wodonga

Postby Catapult » Fri May 09, 2008 11:29 am

For me it was 5 years. Apparently I've had 4 cures now ;-)

Posts: 5012
Joined: Fri Oct 08, 2004 8:50 pm

Postby Be11ydancer » Fri May 09, 2008 3:12 pm

I have two years to go for my five year cure.
Dance like it hurts. Love like you need money. Work when people are watching.
Posts: 1579
Joined: Wed May 18, 2005 11:47 am
Location: Penruff Sydney

Postby mfcr06 » Fri May 09, 2008 3:16 pm

Yep, I was promised 5 years for a cure aswell.

Sooooooo, I have been cured 5 times over plus 1/5th.......
Fiona - T1D Mum of Blue and Pink
Surviving 34 years of T1D :)
Posts: 1535
Joined: Fri Dec 15, 2006 10:01 am
Location: BRISBANE

Postby belinda222 » Fri May 09, 2008 3:58 pm

I was promised there would be a cure by the time I was 30 and if I kept myself healthy I would be a good candidate to receive it!!! I turned 30 in Feb... Im still waiting.....
Belinda :)
Posts: 240
Joined: Fri Oct 26, 2007 10:17 am
Location: wa

Postby artemis » Fri May 09, 2008 4:06 pm

I think all my HPs were realists. No-one ever promised me a cure.
Infundo ergo sum.
Posts: 3949
Joined: Sun Jan 29, 2006 10:32 am
Location: Port Stephens, NSW

Postby Age » Fri May 09, 2008 9:53 pm

Hi All,

according to my doctor when diagnosed, within 5 years I would no longer be D.... so by 22 October 2012 we should all be cured!!! ( wouldn't it be nice if she was right???)

Hope you're all well! :-)
Posts: 29
Joined: Fri Nov 02, 2007 8:05 pm
Location: Nhulunbuy

Postby aelston » Sat May 10, 2008 7:31 am

I'm with Artemis and LongRidge: nobody ever promised me a cure either - they mostly just told me about what was actually being done to find one, if I thought they knew enough to ask!
Acontextual quoting is something that politicians do.
Posts: 272
Joined: Thu Oct 07, 2004 8:21 am
Location: Canberra

Postby Inga » Sat May 10, 2008 11:32 am

Diagnosed age 2 in 1983 my mum was told that by the time I was 15 there would be a cure.... 1995 was quite a time ago now...
Posts: 662
Joined: Tue Feb 07, 2006 3:03 pm
Location: Perth WA

Postby Kate » Sat May 10, 2008 12:50 pm

Doesnt necessarily have to be what you were told when you were diagnosed. I dont remember either of course, but do distinctly rememebr the "cure by 2000" thing beign bandied around when I was 10ish. Thansk for all the stories. Kate
Posts: 5249
Joined: Tue Sep 07, 2004 4:08 pm
Location: Melbourne

Postby cassie » Sat May 10, 2008 7:00 pm

I was told 5 years, now in my 5th lot of 5's, but I was also told I was lucky I was diagnosed in Denmark because in the late 80's they were leading the world and there my be a cure before I left there 10 months later. ;) Oh well, hoping if the monsters get it there will be a cure for them!!!!!!
T1 1987 - pumping June 1999
Posts: 115
Joined: Tue Sep 20, 2005 2:02 pm
Location: Wollongbar (near Lismore)

Postby Jen (nli) » Mon May 12, 2008 8:00 am

I was also told by the endocrinologist I was seeing that "it might go away". I was really insulted by that comment because I thought he was playing me for a fool. When I questioned him about it he admitted that Type 1 doesn't usually go away - no. (- unless you are Halle Berry)
Jen (nli)
Posts: 2639
Joined: Tue Aug 09, 2005 8:46 pm

Postby Anne » Mon May 12, 2008 8:24 am

Hey, where is the 'never, or not in any near future' answer in the poll?

In 1994, I was not promised anything else than better technologies to deal with it, but no cure, or rather unlikely to be applied to the general public in my lifetime, but maybe in research or experiment settting only (they had a few patients with implantable pumps in my university hospital as part of a research protocole)

I was told that instant (30 or 45 seconds) blood tests were recently available to people and this made life a lot easier than the urine tests only.

They kept their word: I got my first pump 18 months later, as my endo was keen on it but it was far from the routine treatment in 1996. And I believe we will get onto some closed loop system in a near-ish future. Not sure what the next (safe) stage will be. Do you?
Carpe diem
Posts: 1215
Joined: Fri Nov 26, 2004 9:23 am
Location: UK

Postby ali m » Mon May 12, 2008 1:37 pm

I was promised I would be cured by age 10 (5 years) by all and sundry at diagnosis - back then we were excited about disposable needles and syringes, and pee strips instead of Clinitest tablets. Woohoo!
After I wasn't cured at 10 (got a Glucometer instead - some "cure"), I wasn't really disappointed at 15, 20, 25, 30 and 35. I guess the big 40 is next.
I am hoping for a closed loop pump/CBGM system as my cure. That will do me just fine I think.
ali m
Posts: 1233
Joined: Mon Aug 15, 2005 12:05 am
Location: SA/QLD

Postby Jacqueline » Mon May 12, 2008 8:29 pm

I was told a bunch of different numbers in the first few weeks - I also found RC on my first day, so I took all the numbers with a grain of salt.

I was told 5 years, 10 years, 20 years, within my (mine not the Dr's) lifetime, and 'before the cure for cancer' - yeah that one was just plain disturbing.

I'm over 5.5 years in now... The first cure prediction was wrong. Bet the next one will be right tho... *ahem* Ok, not likely.
Posts: 237
Joined: Mon Sep 27, 2004 7:28 am
Location: New Zealand

Postby Phil » Mon May 12, 2008 8:50 pm

I was never told anything really either but it has been a while. Think I just turn off when they start speaking all that. I do remember just being told it is not the end of my life and that things are getting better all the time. Would really like to go back in time and have a good argument with that but at the time seemed pretty good. It seemed that 'soon' was the best I could come up with in terms of a response but probably never could fit just as well. Have also been told a while back now that it is too late for me anyway and my body was far too damaged to ever be cured. I wonder why I dont like doctors?
Posts: 384
Joined: Wed Apr 19, 2006 1:33 pm
Location: Melbourne

Postby Erin » Wed May 14, 2008 9:01 pm

I think they said something like 15 years at diagnosis. Then I had a family friend that actually suggested that it was my lack of faith in a cure that was preventing it's coming. Like that God was holding back from inspiring some researchers with "the answer" until I believed it would happen. Yeah, so, I hope my lack of belief isn't holding things up...
Posts: 238
Joined: Thu Feb 17, 2005 8:39 am
Location: Brooklyn NY

Postby Catapult » Thu May 15, 2008 12:52 pm

Erin wrote:I had a family friend that actually suggested that it was my lack of faith in a cure that was preventing it's coming.

That has to be one of the most insensitive, appalling things I've heard say to a person. Like those books that claim you can heal your own cancer by thinking positive. Sure I believe that positivity can do wonderful things, but it is a very blameful approach that somebody isn't cured because they didn't have enough faith. I hope you put that 'friend' right!

Posts: 5012
Joined: Fri Oct 08, 2004 8:50 pm

Postby honey » Thu May 15, 2008 4:33 pm

i dont think i've ever been told there would be a cure, but i do remember way back when i decided to have a baby and was asking about the chances of any babies i might have getting diabetes they told me not to worry about it because by the time the baby was 10? they would have worked out how to prevent it from happening to them.
Posts: 149
Joined: Wed May 10, 2006 3:57 pm
Location: orange,nsw

Postby J'smum » Sun May 18, 2008 1:09 am

When J was dx, we were told "within his lifetime, probably in the next 10yrs" Here's hoping, but not too much.... ;)
Non-D mum to J, 4yrs old
Dx with T1 Aug 2007
When we know better, we do better
Posts: 31
Joined: Tue Dec 04, 2007 9:46 pm
Location: ACT

Postby Rachel » Sun May 18, 2008 1:26 pm

Back in 1984 at 7 years of age I was told they would find the cure in my lifetime. 30 and still waiting.......
Posts: 283
Joined: Fri Nov 26, 2004 4:56 pm
Location: Melbourne

Postby howard » Sun May 18, 2008 2:32 pm

I asked my doctor this 2-3 years ago(I'm 49 now) and he said probably not in my lifetime.
Posts: 49
Joined: Thu Oct 07, 2004 12:47 pm
Location: Cleveland, Ohio, USA

Return to Solid Gold - Some of our Favourites!