Pregnancy with retinopathy

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Pregnancy with retinopathy

Postby Leni » Thu Mar 29, 2007 2:09 pm

As lots of people know, towards the end of my 1st pregnancy, and even more so afterwards, I developed retinopathy that required laser treatment. It's been 16mths now since Caleb was born, and it seems the retinopathy has stabilised and, god help me, I'm preparing to start trying for baby number 2. This is such a huge, scary thing. My health team is confident that all will go smoothly (and I have been given a resounding all clear), but I can't help but be shit-scared about retinopathy.

I did a bit of a google search on "retinopathy and pregnancy" and came across a couple of articles that were really interesting. http://www.medicine.mcgill.ca/MJM/issues/v08n02/rev_articles/82142.pdf this one I thought was particularly interesting as it said it can take 12 months for your eyes/retinopathy to stabilise after the birth of the baby (which I didn't know, and may have helped me deal with it had I known). It also said that retinopathy progressing in pregnancy is more likely in women who were diagnosed at a young age (me - diagnosed at 4yrs old), who had a long duration of diabetes (me - type 1 for 22yrs when I was pregnant), and rapid tightening of glycaemic control during pregnancy (kind of me - A1c was 6.2 at conception, and went as low as 4.8). Also glycaemic control following the birth of the baby, while difficult, is very important to reduce the risk of retinopathy progressing. These factors probably would have been nice to know the first time round - I didn't realise I was so high risk for progressive retinopathy during pregnancy, which is why the whole thing came as such a depressing shock.

Last pregnancy, my eyes were checked by an ophthalmologist, but while she was a surgeon, she didn't do laser treatment. I feel much more secure in the knowledge that this time round, I am seeing a FANTASTIC guy who can do laser there on the spot should I need it. I do feel quite confident that he will do his absolute best for me... it's just that retinopathy is such an unknown to me... it's not like type 1, where I've had (now) 24 years of experience, and read all the books, and have the best treatment options (pump)... Retinopathy isn't a self-managed disease, and so all the literature out there is either aimed at ophthalmologists or just isn't available for the layman.

So I really feel that I face a LOT of unknowns. I've always felt confident in and trusted my health professionals because I know enough to know if THEY know enough.... but retinopathy is different, so I'm really placing my trust in someone without the safety net of having my own knowledge base.

Plus, despite retinopathy, my last pregnancy couldn't have been better - I wasn't sick, I didn't get any swelling or blood pressure probs, baby was perfect (physically and perfect personality - really good sleeper!). So I worry that this time round it won't be such smooth sailing (can you tell I'm a worrier?). And the thought of having to handle 3 babies (Caleb, who will be 2 1/4, new baby, and diabetes - with glycaemic control being so important after the birth)!

Diabetes REALLY REALLY sucks sometimes.
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Postby Mel » Thu Mar 29, 2007 8:53 pm

Good luck for baby no. 2 Leni.

I don't know anything about the pregnancy thing, but I do relate to lots of what you've said. THere are so many things that you don't get told re retinopathy, like how common it is for type 1s and how "sudden" tightening of control (they don't define sudden though) can make it worse and I do think if you are aware of the risks it can make it easier, I was totally devastated to have a haemoraghe 9 mths after getting the all clear and being told that my background retinopathy probably would never develop cos it had been stable for so long. It is really hard cos it seems to me that the progression of retinopathy is really uncertain, so 'there's no gaurantees. If it's any consolation I had the worst possible scenario in everything but it all seems to have settled down now.

I guess a part of living with d is learning to cope with the threat of shit happening all the time and coping with it when it does happen :(.

On the bright side, with your great control and problem free pregnancy, apart from the retinopathy then you must be really healthy and it must be likely you'll have a completely trouble free time this go round. Excellent news too re taking 12 mths to stabilise, hopefully yours will have stabilised and will stay perfect for bub #2
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Postby Jen (nli) » Thu Mar 29, 2007 10:59 pm

Hi Leni,
I'm also about to try for baby # 2, and my daughter is now 19 months old. I got the beginnings of retinopathy just prior to falling pregnant with my daughter. However, it was and is still at the background stage and so I haven't had to endure what you've been through, and I don't know a lot about retinopathy.

I suppose I've been trying to "come to terms with" certain things about my last pregnancy in preparation for another pregnancy. I too have been given the all clear to go forth and try to conceive - and I'm looking forward to it on so many levels - but I'm also really quite scared! There are a lot of "what ifs" and no guarantees and no real control. (and a really high percentage that some of what I experienced will return! ... oh shit).

So - anyway - I don't have any answers for you as I'm going through a bit of the same kind of stuff. I'm just taking it all a day at a time and trying not to imagine what it will be like. Thing is - I'm a little wiser than previously. Prior to my first pregnancy - I tended to worry about diabetic things and pregnancy and much of my energy was in getting it all under control. But this time around, I'm getting the diabetes under control AND I'm very aware of the other problems that may come along!!! The things I actually don't have control over. That's quite a challenging thing for me to go through again - except I have to keep reminding myself that I will not be going through the same pregnancy again - it will be a totally different pregnancy with (hopefully) a different (and kinder, nicer, simpler) story attached to it. I think its really normal to be worried and scared about parts of it though.

So heres hoping that your next pregnancy will have a really smooth, nice, simple, uncomplicated, wonderful story from wo to go. That's also a possibility!
Jen (nli)
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Postby Leni » Sat Mar 31, 2007 9:25 am

Thanks, Ladies :)

Mel, it is nice to know that you faced a tough situation and came through it - it's REALLY hard not to dwell on "worst case scenario" when they tell you all the risks, so it is reassuring to know that it IS possible to come through it ok.

No one can really give me the answers I want... retinopathy seems to me to follow it's own, unpredictable rules. So the only way I will know what is going to happen is to deal with it AS it happens. I guess I feel a bit more positive since, in January, my right eye had healed itself enough to not require any laser treatment (after 2500 burns in my left eye) - which fits in almost perfectly with the "12mths to stabilise" theory.

Laser treatment, while not pleasant, is bearable (though whilst pregnant I won't have the luxury of drugs to deal with the very intense pain) so I think I can cope with that. Ophthalmologist also said he doesn't think my eyes will have any "major blowouts" whilst pregnant, though it is very likely I will need laser during my pregnancy. But of course, it's so damn unpredictable (to me, anyway).

You know, probably the toughest thing is, whilst I really want another baby, I REALLY don't want to risk my eyes... but when you have health professionals saying "It should be fine, and we'll deal with any problems as we come to them, and you will be monitored VERY closely" it's not a clear-cut decision... as in, if I KNEW that I would screw my eyes by having another baby then I absolutely wouldn't have another. They can't guarantee my eyes will be ok, but they believe it will be. It's scary.

And it shits me beyond belief that they tout "have good glycaemic control and you can prevent complications" which is crap. There are lucky people out there that seem to have dodged the complications bullet, but it is SOOO much more common than they lead us to believe. I read somewhere that 98% of people with type 1 will get retinopathy. And also that retinopathy is the leading cause of blindness in people aged 24-55. No wonder depression is so high in type 1 diabetes - they convince us we can prevent a complication that seems almost destined to appear. It's very frustrating.

Anyway, thanks for the comments and thoughts :) Good luck, Jen, for an easier pregnancy this time for you. Looking forward to hearing all about it.
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Postby melbel » Mon Apr 09, 2007 12:31 am

I just wanted to wish you both luck Leni and Jen.

I don't want to scare you but I will relate my best friends story for you, a bit yucky but great outcomes both times. She had no signs of retinopathy when she fell prgnant with her irst and withing the first trimester it had gone feral just like that....they did laser but by 16 weeks the opthalmologist had decided it was really not helping and they would monitor her closely and deliver bubs at 36 weeks. She had a beautiful baby boy by caeserean with no glycaemic issues.

The then did some intensive work to stabilize her eyes and about 18 months later she was told it would be okay to try for number 2.

At first they weren't sure if number 2 would be possible but after lasering the crap out of her eyes they said they didn't forsee any probs. They were wrong. With number 2 her eyes were gone very early into the first trimester, I think they knew they were in trouble at about 8 weeks.

By the end of the pregnancy she couldnt drive and had to have cortisone injected into her eyes to try and stabilise them enough for the pregnancy to continue. Again she delivered at 36 weeks, a gorgeous baby girl.

Now five months down the track her eyes are again just beginning to stabilise. She will never have the same quality of vision she had before but it does settle down as the hormones settle and with laser treatment. Unfortunately in her case the bleeds were close to the macula which has limited the amount of laser they can do so the rest is up to god and time.

Her vision is not that badly impaired however. she can drive and all that jazz but can just see momentary shimmers and ghosting etc when she moves her head too quickly, stuff like so not too major an issue overall

With hindsight would she do it again....absolutely without question in a heartbeat.

Just wanted to share some real world experience. If you are interested I can see if she would visit RC and post her so you can have a chat, that's if you like....
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Postby Leni » Mon May 07, 2007 8:16 pm

Thanks Melbel. I was a bit... down after your post, but after having seen my eye guy today I am in a much more positive mood. (He really is very good!). That really sucks for your friend, but I am glad she has come through it all pretty well.

So I had my eyes reviewed again today, and my right eye has improved AGAIN. My ophthal is so pleased (quite unexpectedly) that he is going to present my case at some conference thing coming up... it seems to be unusual for eyes to "heal" themselves like mine seem to have done. He is quite confident that we should have no major problems with another pregnancy. He said he would absolutely not recommend NOT having another pregnancy based on my eyes (only if I had other health concerns, which I don't - endo is more than happy for me to have another baby).

So I guess we TTC. Scary stuff. I made the stupid mistake of saying "we'll be trying from May" when various relatives asked when the next baby would be (dumb, i know)... so now every time I see someone they ask me if we're pregnant yet. I have enough stressors (retinopathy, 17mth old, diabetes, etc) I dont need ppl asking if we're pregnant yet. Husband had a good idea though - tell them every time they ask it will push the date they are told back by a month... hopefully that will work!

*fingers crossed*
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Postby Rachel » Tue May 08, 2007 12:09 pm

Hi Leni,

Ditto to everthing that you have mentioned of diabetes and pregnancy. I'm thinking, feeling and experiencing this ride with you. My boy has just turned one and I am hoping for another. However, I have severe proliferative retinopathy and my op has told me to wait a year or two until everthing is under control. What state of retinpathy do you have?
Thankyou for finding the articles... i too fit the criteria. I seriously hope the article is right when they say after a year things do correct themselves. I'm feeling positive at the moment but who knows what could happen with the unpredictability of the disease.
It's a scary situation to be in and i wish you all the best for bub 2. Good luck!!
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Postby Leni » Tue May 08, 2007 12:54 pm

Hi Rachel,

I have moderately severe proliferative retinopathy. I had (have?) some retinopathy on my optic disc, which is a worry because lasering there WILL damage vision so they dont want to touch that unless they ABSOLUTELY have to. I also had macula odema - he lasered my macula and that improved to just under 100%. I've had laser on my left eye (began that in about July last year - 5 sessions, total of 2500 burns) and in january eye guy looked at my right eye (in preparation for starting laser) and my eye seemed to have improved (enough to hold off needing laser), which it did again when it was checked yesterday - this seems to be an unusual thing to happen... eye guy was expecting it to stabilise, but not to improve. January was 13 months after the birth of my son, so I do seem to have fit into the "12 months to stabilise" category - I hope you do too!

My situation seems to be a bit unique in that usually retinopathy progresses rapidly during pregnancy, but stabilises after birth... mine appeared during the last trimester, but didn't progress until after the birth, and wasn't bad enough to require laser until 7 months after baby was born. I had asked if breastfeeding and the associated hormones produced because of breastfeeding would be having an impact on my eyes. At the time he said it is possible, then did some research and said that he wouldn't recommend I stop breastfeeding because there doesn't appear to be much evidence to suggest that it would help my eyes. Coincidentally, my body decided it had had enough of breastfeeding so I stopped feeding him at around 7-8mths. It has been since then that my eyes have improved. Next baby I will breastfeed, but if my eyes get continuously worse I think I will stop and see if that helps.

When I asked about another baby early last year, my ophthal also told me to wait before trying for another (not that I was planning to try until about now anyway). He wanted my eyes to be as stable as possible - the idea was to have completed all my laser and to have my eyes stable before falling pregnant.

Rachel, have you had any laser treatment yet? And how did your retinopathy progress during your pregnancy?
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Postby Rachel » Tue May 08, 2007 2:15 pm

My history is similar to yours....... I'm 29 and have had D for 22 years, complication free. I had no changes in my eyes until my last trimester of pregnancy and things progressed rapidly the months following birth.
During my pregnancy I developed pre-eclampsia and high blood pressure at 34 weeks. I had an emergency c-section and a day after i noticed my eyes were a little different. There was so much going on in other aspects of my health plus coping with my newborn Charlie that i ignored the changes. I just thought I was seeing things cos i was so tired. I shouldn't have ignored the changes because I had a bad bleed in my left eye not long after.
This was my first and worst bleed in june last year. I had an angiogram and was told I had severe proliferative retinopathy. My right eye wasn't so bad but it also wasn't that great. My opth started laser straightaway.
This was the worst considering the timing of the situation. My vision was completely hazy in my left eye and I had to stay at mums for a while in order to care for Charlie properly. It was so depressing. I wanted to enjoy him but was struggling to do simple things. Driving was a no-no for the first few weeks. It took about 3 months for my vision to go back to normal.
My second bleed was after christmas. (Bad timing again) This time I had bleeds in both eyes. This was my biggest fear. Luckily the bleeds weren't as bad as the first and cleared in a matter of weeks.
I got married in march this year. I enjoyed myself on the day and was so happy that my eyes didn't cause me dramas. After the honeymoon I had some more bad luck and had yet another bleed in my left eye. It was mild but still a real downer. I feel like I'm recovering well then being hit again and again. I guess the fact that the bleeds are gettign smaller and milder is a good sign.
I have been seeing my opth every 3 weeks since june. Off the top of my head, i think i have had around 2700 strikes on my left eye. He has told me he can do no more. My right has had around 1000. I stopped breastfeeding at 11 months. That was only one month ago so it will be interesting to see what happens. I asked my opth if he thought breastfeeding was contributing to my retinopathy and he also said no. He's quite confident that things will stablise and says the laser treatment is working well. I just wish things would work faster and settle. He hasn't ruled our more babies.
I have also been to the eye and ear hosptital in melbourne for another opinion on my eyes. This was in December. The female opth then said not to consider more children. I was devasted. My partner, thinks she meant for now, I think she meant forever.
It's such a hard decision to make..... do you take the risk?? The disease is so unpredictable. I now how depressing and hard things got for me just after charlie was born with my first bleed. It would be difficult to go there again with a toddler and newborn. The post I read from melbel scared me a little. I'd liked to speak to her to see how she coped.
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Postby Leni » Tue May 08, 2007 5:05 pm

I remember now reading your posts about your retinopathy. You had a really rough time, so I can completely empathise with your anxiety over whether or not to have more children.

I think the best we can do for ourselves is listen to our specialists, moreso with retinopathy than type 1 I reckon. There are no guarantees that my eyes won't go to hell with another pregnancy, but my specialist believes that any problems will be managable. If he had said that he wasn't sure, then I would have decided on no more babies. But he seems confident, so I will trust in him.

My situation is a little different in that I have never had a bleed (*Touch wood*). My eyesight was a bit blurrier than normal when my endo checked it for my driving form, and I already had an appt with an ophthal about a week after that. And current ophthal decided, given that I wanted to have another baby, to do preventative laser treatment... he said technically my eyes were on the boarder of whether or not to perform laser, and if I hadn't wanted to have a baby he would have not done the laser and just kept a close eye on it.

Good luck Rachel. I really hope your eyes sort themselves out and you are given the go-ahead for another child.
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Postby Anne » Sat May 12, 2007 3:52 am

Reading your posts is really scary but at least it means we are more informed.

It seems that for you ladies who did not have retinopathy before getting pregnant, when it occured it was some time in the third trimester. I wonder when is the most useful time to do the third trimester eye test, late/early in third trimester?
Carpe diem
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Postby Leni » Tue May 15, 2007 2:20 pm

Hi Anne,

I've never been told that it should be at a specific time (ie early or late 3rd trimester) just that it should be done. I think it's also a good idea to have it checked after the birth of the baby (though probably unnecessary if there were no changes during pregnancy) - this is really when I got into trouble which apparently is a bit unusual. Purely to make life easier, I would get it done mid-trimester... things can get unpredictable the later you get (going into labour early, etc).
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Postby Anne » Wed May 16, 2007 6:40 am

mmh... Might do it soon then, as things are starting to speed up already(31w). Being tested for other stuff than diabetes related right now and birth might be sooner than expected so may forget about the eye check.
Thanks for the advice :)

Anne
Carpe diem
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Postby Leni » Mon Dec 10, 2007 6:23 pm

I'm 15 weeks into my second pregnancy, and so far so good (*touch wood*). Saw my ophthal today and my eyes haven't changed - my left eye looks slightly better than it did in May. Ophthal thinks my eyes will be fine during my pregnancy, but afterwards is when we may have problems - which is what happened last time. He thinks the problems will be with the right eye (which hasn't been lasered because it spontaneously improved), not the left (which is the one that was lasered).

So only 23 weeks to go.
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Postby Mel » Thu Dec 13, 2007 4:06 pm

GOod that things are going well so far, fingers crossed you get a pleasant surprise and everything will be fine after the birth as well.
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Postby Rachel » Sun Dec 16, 2007 7:59 am

Well done Leni!!

I really hope your eyes stay perfect during and after your pregnancy. I admire your strength and hope that I have as much luck as you.
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Postby Clare » Mon Dec 17, 2007 2:51 pm

I got the book "Pumping Insulin" recently and it has a little section on how you can temporarily worsen retinopathy when you suddenly tighten control after you go on a pump. I know sudden tightening of control is part of the reason pregnancy can worsen retinopathy, so what it says about this is probably relevant. It's basically about sudden improvement causing a rise in vascular endothelial growth factor (VEGF), which causes new blood vessels to grow.

If you have this book, it's text box 2.1 (in the 4th edition). If anyone doesn't and wants to know the details I'll type it in, it's not too huge.
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Postby Leni » Tue Dec 18, 2007 10:30 am

Thanks Mel and Rachel :)

Rachel, I'm not sure I have strength... I'm just kinda taking it a day at a time, and crossing my fingers that all goes as well. Scared shitless though :) I think my ophthal thinks I'm slightly neurotic... he was saying there was a bit of retinopathy in a place that could very well damage my sight if we tried to laser it, so we'll only do it if it gets to a stage where he thinks it needs it (ie not yet) - which to me means "only do it if you absolutely have to"... clearly, I would prefer not to damage my vision if at all possible. After I said that he said "It's not a definite, you know... just a possibility". Still! I would prefer to only risk the possibility if he feels we really have to, you know? (I'm not going against medical advice - he doesn't think it needs lasering just yet).

Clare, I think sudden tightening is only a very small part of the problem during pregnancy - the main problem is pregnancy hormones, relaxin, and increased blood supply. During my last pregnancy my retinopathy actually didn't appear until the third trimester (by which stage my HbA1c was pretty stable) and didn't actually get WORSE until about 6 mths after the birth - I saw my ophthal regularly and it got progressively worse during the first 6 mths post partum to a stage where I needed laser. This is apparently rare though... apparently retinopathy normally regresses after the birth (Rachel and I must be very unique indeed!).

Type 1 is such a shit disease.
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Postby Rachel » Sat Dec 22, 2007 7:21 pm

Leni, My optho thinks I'm neurotic as well. lol. On a previous visit I left the room crying. I've always been strong but this one day I lost it. I was just so over it! He was really concerned and even called me during the week to see how I was coping. After 18 months of reviews, laser and "watching what happens" it all got to me... especially after improving my hba1c and hoping for some good news. Now it looks like I will be getting vitrectomy surgery.

I am wanting to have another child so badly. Even after all the hardwork, bad pregnancy (pre-eclampsia) and retinopathy. It's a real pain that my eyes are the one thing holding me back. I have just started on the pump and I'm hoping that things will improve things . Previously my bsl's were very fluctuating. I can't imagine this helping my eye condition.

You are in a much better position than myself. You seem to have excellent tight control, a very healthy background and a positive attitude so I wouldn't think that things could get worse. But yes, retinopathy is a bitch and has a mind of it's own. I can understand how scared you must be feeling.
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Postby Melzy » Thu Dec 27, 2007 10:48 pm

Hi Ladies - I'm back again too! I had my daughter almost 1 year ago and my eyes are still not totally clear, however my opthamologist has told me they're looking better than they have in ages! Which is great, because I've just discovered I'm preggas again!! I'm thrilled of course! But also now back in that crazy land....hopefully my eyes wont have any bleeds this time. Mine did bleed right after my daughter was born, so, same for me, worsened after the birth....I think I have bigger kidney issues - leaking protein....

Anyway just wanted to say hi and I know how you're all feeling too!
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Postby Leni » Mon Dec 31, 2007 11:24 am

Congrats, Melzy! There really are a lot of us pregnant right now! When are you due?

I hope your eyes hold up well... This retinopathy thing really is a bitch. And expensive!
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Postby Melzy » Mon Dec 31, 2007 4:52 pm

Thanks Leni, by my count I'm only 5 or 6 weeks, so due July/August. I live pretty remote so I'm not going to be able to confirm this till I go to the big smoke for my appointments.

Yes retinopathy sure is a bitch! I had slight problems before having my daughter, they did some laser in the first trimester then let it go until after I had her. During the late stages of my pregnancy my vision was terrible - then after I had her, a bleed. After having her (Jan this year) until about 2 months ago I've been getting laser. I last saw my specialist in Nov and he told me my eyes were looking great and I shouldn't have any problems with another pregnancy - we'll see - I'm scared shitless to tell the truth - I'm really REALLY over laser!

Not expensive for me - I get seen by the hospital outpatient clinic. I've been going there for years and the head of the department looks after me - I consider myself VERY lucky, they look after me well. I did go to a private clinic closer to home once and almost had a heart attack when they mentioned how much the laser was going to cost me!

It's great that there's so many of us pregnant out there, and mothers already for that matter! I remember thinking I may not be able to have kids.

Do any of you worry your children may develop T1??
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Postby Leni » Tue Jan 01, 2008 9:24 pm

Melzy wrote:Not expensive for me - I get seen by the hospital outpatient clinic. I've been going there for years and the head of the department looks after me - I consider myself VERY lucky, they look after me well. I did go to a private clinic closer to home once and almost had a heart attack when they mentioned how much the laser was going to cost me!


Sounds like you are well looked after. I love my ophthal... he is really great. Plus he doesn't charge me for half the things he should, and for the stuff he DOES charge me for he gives me pensioner rates - I guess he figures we'll be working closely for, well, the rest of my life (or his working career) so he might as well be kind :) Laser is expensive though... thank the stars for the Medicare Safety Net!

Melzy wrote:Do any of you worry your children may develop T1??


I had my son enrolled in the TRIGR study (which has now closed) so they tested him for the genes when he was born. He was low risk, so has no more chance of getting type 1 than anyone else, which is reassuring... but doesn't mean he won't get it. Because he was low risk, we've been moved to the VIGR study - they asked me if I wanted baby #2 tested, and I said yes, so they're going to organise that for me for when bub is born (will use cord blood).
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Postby Rachel » Tue Jan 15, 2008 12:49 pm

Congratualtions Melzy! I hope it goes well for you and retinopathy doesn't rear it's ugly head.
Good luck!
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Postby Melzy » Tue Feb 12, 2008 10:38 pm

Thanks for the congrats Rachel. I wasn't going to say anything, I was thinking why bother - but when I went to the city for my scan to see how far I was etc we discovered that there was no heartbeat, so I was booked in straight away for a D & C, that was 3 weeks ago this Thurs. The scan showed measurements of approx 9 weeks. So I guess it died about a week before my scan.

I'm sure others go thru this which is why I posted. The doctors were great and assured me it may not have necessarily been my Diabetes and could've just been statistics.....

Anyhow, eyes have been fine. Going to try again of course....
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Postby Rachel » Wed Feb 13, 2008 7:46 am

I am so sorry to hear of your loss. It must be a terrible time for you. I'm not really sure what to say but I am thinking of you......
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Postby Mel » Wed Feb 13, 2008 8:20 am

Sorry to hear that Melzy.
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Postby Catapult » Wed Feb 13, 2008 10:27 am

I'm so sorry Melzy. Thinking of you ...

Cat.
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Postby Leni » Thu Feb 14, 2008 6:14 pm

Melzy, I too am so sorry.
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Postby Dann-Hr » Fri Feb 15, 2008 6:30 pm

I'm sorry for your loss, Melzy.

I had almost identical situation in January 2005. That was my first pregnancy, HbA1c was 5.2, the pregnancy was carefully planned...

I recovered fast physically, but it took some time before I felt ready for another pregnancy. I discovered I was pregnant again in November 2005. The irony is that I wasn't feel really ready at the time, and for me and my husband it's still a mystery how that happened LOL... I mean, obviously we had sex, but based on everything it was pretty unexpected...
In July 2006 I got my beautiful perfect son :) Pregnancy was piece of cake, and my sugars perfect all the time.

I wish you all the best.
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Postby Leni » Thu May 01, 2008 7:58 pm

Bit of an update... im 35 weeks now and had my eyes reviewed last week. All going well, no changes at all compared with 6mths ago so that's great. It all kind of went downhill after my son was born, so I'm not counting my chickens yet but I've had such a stressful time lately it is a bit of a relief to know the eyes are ok so far. Next appointment is about 4 weeks after baby is scheduled to come, so we'll see what happens then. Fingers crossed!
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Postby Mel » Thu May 01, 2008 9:44 pm

Fingers crossed Leni that things will be great, both for birth of bub 2 and also for eyes remaining stable. I'm sure it'll all be great.
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Postby Catapult » Fri May 02, 2008 11:36 am

Great news Leni, hope the good spell continues.

Cat.
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Postby Rachel » Thu May 15, 2008 9:40 am

That's great news Leni! I have been thinking about you and wondering how things with your eyes are going. You've given me hope!!

Not long until bub number 2 is here.... I wish you all the best for a safe and healthy arrival. Good luck!
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Postby Rachel » Thu Aug 28, 2008 2:09 pm

Hi Leni!

It's been a while since you posted here.... and I was just wondering how things were going....

... how is bun # 2?

... how are your eyes?

I hope no news is good news and you are staying well.
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Postby Leni » Tue Sep 30, 2008 1:14 pm

HI Rachel,

No news is good news. Haven't intentionally not been visiting RC, just very busy! :)

We had a boy, named Flynn, on the 19th of May. He weighed 4090grams, 52cm long - a big baby :) Though now he has trimmed down to be 50th centile for weight, and only 25th centile for length.

He arrived in a rather traumatic birth - they couldn't get the spinal block in, so I ended up having a general anaesthetic which, I have to say, sucked. Flynn had some breathing issues to begin with (due to the anaesthetic I had, I believe - he needed help to get breathing when he was first born, and then his oxygen sats wouldn't stay up, so he was in special care for a few hours while that was sorted out) but was fine and back with me the next day.

When i came out of the anaesthetic I was in terrible pain (GA means no regional anaesthetic, which means you feel the extent of your injuries!) and it took a little while to get me drugged up. Recovery was much the same as last time - quick! I chose to have an early discharge so I could go home and be with my husband and older son - being in hospital, I found, was somewhat pointless as I was fine, baby was fine, I didn't need instruction in how to look after a baby, so home we went (plus I had too much time to think about how awful the birth was, so I needed to get home so I could get on with life).

Flynn is an amazing baby. Very happy, very easy, good sleeper, good eater. Just amazing. Caleb and Flynn adore each other too, which is just amazing.

Eyes-wise, they were fine until about 3 weeks ago when they found some leaking fluid in my right eye (left eye, which is the one that had the laser treatment, has so far shown absolutely no change, which is excellent!). I go back again in 3 weeks or so to check how it is going - if it is worse, they will laser it which is apparently less painful and takes less time/less burns than laser treatment for bleeding.

I cried when I found out about the leaks, but honestly I am just too busy with two kids to dwell on it so I just do my best and get on with things. I see the endo for the first time since I left hospital this week, so that will be interesting too!

So in general, all is going well. We'll see how we go in 3 weeks time though.
Leni
 
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