ISYAD
98 Report
by Sean Walsh
The Inaugural Summit for Young Adults with Diabetes (ISYAD) was
an absolute success. I will never forget the feeling of being totally surrounded
by young people with diabetes. There was such an overwhelming feeling of
support and heaps of people with stories to listen to.
The highlight of the day, for me, was the speech given by the Cindy
& Kim from Ballarat. They shared their experience of knowing each other
as workmates for some time before discovering that they both had diabetes.
This formed the foundation for a very positive friendship and I was so
happy to hear about this. I think it's just about caring; if we care, we
can help each other.
Dr Janine Stennett rocked up with a good attitude to share - 'get positive'
and 'set goals'. Her presentation was very well received with lots of questions
from the audience afterwards.
Prof. Len Harrison laid out the truth about cure research - so far,
all the treatments (islet cell transplants etc) need immune suppression.
However, the spotlight is now on a new way of preventing type 1 diabetes,
in people who are at risk. It seems that by inhaling small doses of insulin,
people who would normally be predicted to develop type 1 might be free
of it for many extra years, maybe indefinitely. The trick is in detecting
who's susceptible, and Melbourne researchers have been leading the world
in this area.
Dr. Peter Colman spun us out with new technology - pumps and glucose
meters that work around the clock. I particularly liked the watch which
is supposed to measure your sugar level!!! I'm hanging out for something
like this it would make life so much easier. Dr Colman talked about the
Minimed pump which sounds impressive and is already starting to be used
here in Australia (although it costs a fortune, about $7000). It
can't be too far off that continuous glucose sensors will hook up with
the pump and whammo we'll be 'wired for life' - as good as a pancreas.
Then it was workshops, and I could have gone on all day chatting and
listening and learning. Finally dinner with guest speaker David Parkin
(Carlton Coach) attempting to turn us all into heroes with super levels
of fitness and commitment. I think he had an important message about "choice"
and "decision"; do we really choose what we want in life, or do we let
other people influence and control us? You can choose to be healthy despite
what other people are doing around you, and no matter how difficult your
past has been. Good stuff.
Big hugs and thank yous for Kate and the team from DAV. Must have taken
a lot of effort to make this happen. Well done everyone.
View the ISYAD 98 programme. |
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What People Said
About ISYAD 98
"What I've seen at this conference is a fantastic example of people
taking
responsibility for their diabetes and for other peopleís diabetes.
Today
has been an inspiration."
- Gordon Bunyan
"The summit was a good example of the best
that can happen when
'consumers' and 'health professionals' blur the boundaries between
them to create a collaborative effort that impacts on all involved."
- Mike Janssen
"This goes off!" - Derek
Dear Kate,
"Well done for all the hard work, it definitely made itself all worth
while. Gin and yourself and your gang of workers certainly brought
a smile to the face of many people on Saturday, and well now the sky's
the limit. Now armed with many eager faces and keen hands, imagine the
noise we can all make!!
Here's to a bright and happy future, watch the Walter & Eliza Hall
Institute for more details, meanwhile none of us need carry the burden
alone anymore ."
Kaz Hirth
"Where do I sign up for next year?"
- Sarah
Kate,
Just a really quick note to say congratulations to you and Gin for
Saturday. It really was a complete success and you guys did a fantastic
job in organising it all. Since Saturday I feel a lot more motivated and
a bit less depressed about having diabetes than I have for ages and I'm
sure a lot of the other attendees would be feeling the same. Well done!!!
Helen Knight |
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